Our 4-year-old son Ross has severe Hemophilia A, an incurable genetic condition that prevents blood from clotting normally. We are raising money again this year to support the the National Hemophilia Foundation and its New York chapter, who have been incredibly supportive to us ever since Ross was diagnosed at birth with no family history of Hemophilia. Thankfully, Ross is a very healthy and active little guy. Thanks to recent medical advances, all it takes to keep Ross regularly protected is a quick shot of clotting medicine in the thigh once weekly that we administer at home in just a few minutes. This lets him focus on all the important stuff like Pre-K, playgrounds, swimming, math, geography and sharing (well, maybe not so much the last part, but it’s a work in progress…).
Research and treatment for Hemophilia have come such a long way, and with your generous support we’ll get closer to the cure!
Many thanks for all your amazing support over the years!
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."