My story in short
I have suffered from “bad periods since first period” been to 21 doctors not counting er doctors
I couldn’t focus in school. week of period I miss school or sleep threw class not meaning to. I drop out high school in 2008,10th grade. Get GED CNA. CMA. ACMA work nursing care and hospice always having bruises
Marry in October 2014
In March 2016 had a laperscope done to determine if I had endometriosis. Indeed stage 2. I had so much pain after surgery I’ve been on just about every birth control. Even told to be on two at one time to stop bleeding. Told I need to do lupron or ablation to have mema pause at 25 yrs. I pass and continue suffering.
At 28 year old. I’m pregnant sick every day. Set to go to hospital to induce and he decides to make intrence on his own. Drive to okc get a room epidural and with in minutes I am getting turned on side oxygen mask and told theos heart rate dropped into 50’s - 60’s going to have emergence C-section. Goes well then. Till I’m send home in crazy pain my c- section gets infected after my follow up with Dr.
my son gets circumcised just before we leave the hospital and bleeds for 10 days I’m told nicked artery and my have to remove band.
so my son is in pain I’m in pain from c-section. And pandemic is about to start.
Theodore is now 3 and half years old.
He has severe Hemophilia A and von willbrand disease, we both are hyper mobile every where in our body elhers danlos syndrome is most likely. Theo and his parents would be very thankful for any donations to Oklahoma Hemophilia foundation. It doesn’t go to Theo alone. It goes to other babies and family’s that have trouble with funds. .
I know I hate seeing kids with bruises. These kids need YOUR help. Treatment for a bleeding episode cost thousands. There is no way around it. Hemophiila needs factor VIII.
One dose for a size of a baby is easily 500 just for medicine not counting blood draws and scans.
hope this brings more awareness of hemophilia. 💉🚨🚑
For many, a world without bleeding disorders is simply a dream. Thousands of kids and adults affected face internal bleeding, costly treatments and lifelong infusions.
Join No Stopping Theo by registering for our team. Donate or raise 25$ get your support shirt come to our walk in stroud, OK in November!
Thank you in advance for your support and united, we will raise awareness