Our little princess woke up at 5 weeks old with bruising on her body - after a nightmare from our local hospital and a wonderful hematology group, several tubes of blood (39 from mom and the max allowed to be taken from sammi at her age) Sammi was diagnosed with Von willebrands disease. Luckily, this won’t stop her from any activities and she can be a kid!
Diagnosis is Type 1 Severe von Willebrands disease. Through this organization she wears a medical alert bracelet and through the Hemophilia Center she’s received amazing treatment and care like you couldn’t imagine. We are so grateful for the help these local organizations have given our family. Thank you for any support you can give!
Our Lev was also born with severe VWD. Last year we’ve decided to change our team name to represent two of our three kids with bleeding disorders. The best part is - all five of us are their biggest supporters!
For many, a world without bleeding disorders is simply a dream. Thousands of kids and adults affected face internal bleeding, costly treatments and lifelong infusions.
I’m all in to help end bleeding disorders. My personal goal is to raise as much as possible for this worthy cause. Will you help me reach my fundraising goal? It’s easy — just click “donate” to make a secure donation.
Every dollar stays within our community and supports critical initiatives such as funding research to find better treatments, educating medical providers on the latest innovations and care, ensuring families have access to quality healthcare and providing access to the best educational resources available.
Will you help me reach my fundraising goal? Please make a donation today.
Thank you in advance for your support and united, we will make a difference.
Sammi, Lev and family