For many, a world without bleeding disorders is simply a dream. Thousands of kids and adults affected face internal bleeding, costly treatments and lifelong infusions.
My little boys are just two of those who are affected by bleeding disorders. Ryan Andrew has moderate Hemophilia A. Because of this, he must receive infusions of Factor twice weekly. And then infuse again if he still ends up having a bleeding episode. Robbie has a mild platelet malfunction disorder, which means he must take medicine for the mouth bleeds he tends to have. These treatments get very costly, and this walk helps to provide us with their medication.
Aside from that, the Unite Walk helps to send our children to Camp Hemotion. This camp is for children with bleeding disorders, and allows them to make relationships with other bleeders. This camp is also where many children learn to infuse themselves. Going to camp is an amazing opportunity for these children and this walk helps to send them.
Our walk will also help with the goal to find a cure for bleeding disorders. And that goal means a family of cures for me. It means a cure for my uncles, cousins, nephew, and sons. While my family has lived with this through generations, a cure would change so many lives.
I’m all in to help end bleeding disorders. Please join my walk team, and prepare to virtually walk with my little family. Or consider helping me reach my fundraising goal. It’s easy — just click “donate” to make a secure donation.
Every dollar stays within our community and supports critical initiatives such as funding research to find better treatments, educating medical providers on the latest innovations and care, ensuring families have access to quality healthcare and providing access to the best educational resources available.
Please make a donation today.
Thank you in advance for your support and united, we will make a difference.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."