Life With Hemophilia
&
Why I Started A Walk Team

My name is Jaycee Knox, and I have Severe Hemophilia A.

I firmly uphold the conviction that my condition does not dictate or limit what I can accomplish. Apart from being a devoted spouse and an affectionate uncle, I am also a dog dad, small business owner, and advocate for those with bleeding disorders and other rare diseases. By proudly showcasing many facets of my life, I hope it presents an opportunity to reshape the perception surrounding life with Hemophilia, encouraging others to reveal their own potential to overcome barriers within their own lives.

Life with Hemophilia has indeed been a journey packed with tests and trials, but it has equally been a remarkable character builder, enhancing my resilience, determination, and zest for life in unparalleled ways. Its impact on my life is nothing short of dramatic.

To be honest, the impact it has had on my life cannot be overstated.

It has shaped every experience, every choice, and even my desire to live.

I chose courage over despair. To me, hemophilia transformed into the cornerstone of personal development; it nudged me towards conquering the odds and exceeding all set limitations created by this condition.

When I first entered this world, it was not under the most conventional circumstances. During my birth, due to complications unforeseen by the doctors, forceps were used as a means of assistance. These medical instruments — typically relatively safe tools that lend support during childbirth — unintentionally inflicted injury upon my fragile newborn brain which resulted in an  bleeding from both my eyes and nose.  Due to my severe Hemophilia, my blood does not clot, this made things even worse. 35 years after my brain bleed - its impact lingers.

As distressing as this may sound initially, over time I've come to see this event differently.

Yes, it was an unfortunate incident that certainly shocked everyone involved at the moment. But it has also become an enduring reminder for me about life’s fragility and preciousness - a constant testament to our vulnerability yet incredible resilience as humans.

Although I was not able to pursue my dream career as an active combat service member or a NASCAR driver, I refused to let that setback define me. Instead, I channeled my determination and resilience into accomplishing other feats.

I explored alternative paths and discovered new passions that allowed me to excel in different areas. Whether it was pursuing a different career path, engaging in community service, or honing my skills in a different field, I embraced the opportunities that came my way. Despite the initial disappointment, I found fulfillment and success in unexpected places, proving that setbacks can be catalysts for personal growth and achievement.

A common misconception about people with hemophilia is that they cannot live a normal, active life.

However, this belief is far from the truth. While individuals with hemophilia do have a bleeding disorder that affects their blood's ability to clot, it does not mean they are unable to lead a fulfilling and active lifestyle. With proper management, including regular treatment and careful monitoring, people with hemophilia can engage in various physical activities, participate in sports, and pursue passions just like anyone else while not being confined to the bed or couch. By working closely with healthcare professionals and adopting appropriate safety measures, individuals with hemophilia can enjoy a normal, active life while managing their condition effectively.

While I have been able to carefully plan my life to minimize the risk of bleeding episodes while engaging in various activities, there are times when it is simply not possible to avoid them entirely. Despite my best efforts to manage my condition, unexpected situations can arise, leading to unforeseen bleeding episodes.

It can be frustrating and disheartening when these episodes occur, as they can disrupt my plans and temporarily limit my ability to participate in daily life.

However, I have learned to adapt and navigate these challenges with resilience and patience. By seeking prompt medical attention, following appropriate treatment protocols, and relying on the support of my husband, family, and friends, I can effectively manage these episodes and get back on track toward living a fulfilling and active life.

I remain determined to continue pursuing my passions and embracing life to the fullest, even in the face of unexpected challenges which is why I have created a Hemophilia walk team to support the research and medical advancements and the hope of one day, a successful and affordable cure for Hemophilia. I would not be able to live my life to the fullest as I have if it were not for generous donations from the community.