Our little princess woke up at 5 weeks old with bruising on her body - after a nightmare from our local hospital and a wonderful hematology group, several tubes of blood (39 from mom and the max allowed to be taken from sammi at her age) Sammi was diagnosed with Von willebrands disease. Luckily, this won’t stop her from any activities and she can be a kid!

Diagnosis is Type 1 Severe von Willebrands disease. Through this organization she wears a medical alert bracelet and through the Hemophilia Center she’s received amazing treatment and care like you couldn’t imagine. We are so grateful for the help these local organizations have given our family.  Sammi has grown to love her bleeding disorder and cannot wait to be a hematologist when she’s older! Thank you for any support you can give! 

Our Lev was also born with severe VWD.  Last year we’ve decided to change our team name to represent two of our three kids with bleeding disorders.  The best part is - all five of us are each other’s biggest supporters! 

Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those living with bleeding disorders. Our team is committed to raising money to support those affected in our community and raising awareness of the urgency to find treatments and a cure. Please consider joining our team for the Unite For Bleeding Disorders Walk or choose a team member from the list and donate to our cause.

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Team Members