Evan was diagnosed with severe Hemophlia A when he was 8 months old. With no family history of this disease, it came as a complete shock to us. Evan has now had two portacath placement surgeries in order to make his treatments easier to give him.We hope that someday he will be able to attend the Hemophilia Camp that will teach him how to infuse his medicine through this veins. The camp is funded by wonderful donors at the Hemophilia walk.
Hemophilia is hereditary and we would love to see a cure in Evans lifetime. Until then, we will educate to help make his world and others a more understanding place. Please consider donating to our walk. The money donated helps other local families and fund educational events.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."