I’m Alaina and I’m 12. When I was 8 and in the 3rd grade, I used to get strep throat a LOT, so my parents and doctors decided it was best I got my tonsils out. I had to do a bunch of preop blood work and physical before surgery, and everything said I was good to go.
What we didn’t know, is that it would end up being one of the scariest times in my life, that will affect me forever.
I went in, had it done, stayed one night because we were so far away from the hospital then went home. I woke up and told my mom I had a funny taste in my mouth and long story short, ended up hemorrhaging and having to go in for emergency surgery 3 more times, spent almost 2 weeks at the Rainbow House next to Children’s of Omaha, and they finally were able to get me to clot properly with a medication called Amicar(it’s horrible)!
After sending my blood to 3 different hospitals around the Nation, even though the original tests were negative, a specialist from Wisconsin found I have a rare variance of Von Willebrands disease and that’s why all my testing came back okay preop. I can clot for minor cuts and scrapes, but during the winter, if I get a sinus infection, I have to carry an $800 medication with me called Stimate because my last bloody nose was 5 hours long! And this is just my life. As with other kids and adults, aside from costly medications and treatments and infusions, but carry the risk of internal bleeding.
Wouldn’t it be great if we could find a cure where kids like me and adults didn’t have to worry every time they bump their head or cut themselves?
I’m all in to help end bleeding disorders. My personal goal is to raise as much as possible for this worthy cause. Will you help me reach my fundraising goal? It’s easy — just click “donate” to make a secure donation.
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Thank you in advance for your support and united, we will make a difference and can save lives!