My youngest child and I were both diagnosed with Hemophilia A in 2019, after having gone years-decades without protective treatments. Despite lab work, I was told ”women bleed” and “You *might* be a carrier but you’ve had 2 babies and 10 surgeries without treatment and seem fine.”

Meanwhile, my joints are WRECKED. Many of my internal organs are damaged from decades of inappropriate medications and surgeries without bleed protection. 

I now infuse 1-2x/wk as a preventative measure to protect my joints and organs. I became a phlebotomist so I could support my 14yo with their on-demand infusions. We have to dedicate an entire shelf in our fridge to store our medications away from heat exposure. Without insurance, our medications would cost over $10k/month. Thus, I freak out every time my health insurance is at risk.

Our family is working together to raise as much as possible to help end bleed disorders. Hemophilia is mostly genetic and genetic research is super expensive. Additionally, development for new treatments is costly. Living with this disorder costs more than medications and the National Bleeding Disorder Foundation makes it possible for my kids to have quasi-normal childhood experiences, access to the latest education and research and engaging social interactions. 

Will you help me reach my fundraising goal? It’s easy — just click “donate” to make a secure donation. Please make a donation today.

Thank you in advance for your support and united, we will make a difference.

Sincerely,

Pam