Our bleeding disorders journey started in 2000 when Avery was diagnosed with severe von Willebrand disease. After the shock, we immersed ourselves in the bleeding disorders community. We welcomed Wyatt in 2002, also diagnosed with severe VWD (one in a million people, worldwide, have severe VWD), and continued our journey. Kameron joined us in 2004 and has more clotting factors than the four of us combined! :) Through all our adventures, our local bleeding disorders chapter, Rocky Mountain Hemophilia & Bleeding Disorders Association, has been a beacon of light–offering education, friendship, resources, community events, and scholarships. We join them in their efforts to raise money and awareness of hereditary bleeding disorders. Please help us reach or surpass our fundraising goal of $1,000!
Much love, Amendes
Get The Word Out
https://www.uniteforbleedingdisorders.org/participant/93709