What's up guys?!
I'm so proud to be a part of the New York City Hemophilia Walk for the 16th year and I'm so happy to be doing it with all of you. As you may know, me and my family have been in it since the beginning in 2006. When I was born, my parents felt like most new hemophilia parents do. Scared. Worried. Confused. Alone. They needed someone to talk to, someone to tell them what to expect, someone to tell them it would be okay. That option wasn't really available to them. So because they couldn't join a community of people like them, they did what everybody else does: They created one.
Over the past 16 years, I have grown up around of community of people built to help support one another. NYCHC has given me and other hemophiliacs the ability to connect with people who go through the same things as them, and helps them get through the day to day of living with the disorder. The reality is, with all of this support, I'm able to strive and be as successful (if not more successful) than my peers. This chapter and the walk itself serves to educate people on what is means to have hemophilia and help the friends and families of patients to better understand what it means to be close with someone with the disorder.
I am a healthy, 19 year old and I have a great future ahead of me. As I am off at college now, I look back on what has gotten me to this point. The walk and NYCHC are a main reason for why I am here today. The chapter has allowed me to thrive.
Obviously, this is a non-profit organization and the walk is our biggest money maker as far as donations go. So naturally, you will expect me to ask you to donate as much as you can to such a necessary cause of community and education. I'll keep it short. I just want you to know that your donation and your simple presence at this year's walk is what keeps the chapter going. We can't do it without you. There wouldn't be an "it" without you.
If you have read this entire thing, I applaud you. Seriously. Reading it back now I realize it's kinda long. But it's important, so I didn't cut too much out. (Sorry). Thank you so much for being involved with this amazing cause.
Your favorite hemophiliac,