My grandson, Colin is now 5 years old and will start kindergarten soon. He loves swimming and is learning to play golf (like his Mimi!). You probably remember that Colin has severe Hemophilia A, a rare bleeding disorder that interferes with his ability to form clots.  Every morning, while watching TV, my daughter, Kate or Jordan (Colin’s parents) give Colin his life-saving medicine through a medical device (port) in his chest.  

Colin has been doing amazingly well. But the year has not be without challenges.  Last week, Colin’s port failed and he subsequently underwent surgery at Boston Children’s Hospital to replace it. Surgery was successful! Through it all, Colin has been a shining light of positive energy.  (When he was discharged from the hospital, he said, “This has been a great vacation, I loved getting all my meals in my hotel room.”) He is a remarkable little boy.

Once again, I am asking for your support for the New England Hemophilia Association (NEHA) Annual Walk on Oct 2nd.  NEHA has been an endless source of education and support for Kate, Jordan, Nora, and Colin. This organization also supports the necessary research which I hope will result in a cure.  I hope we see a cure in Colin’s lifetime.

You have been so generous in the past and I hate to ask in the midst of Covid but NEHA is a small non-profit that depends on the support of people like us who care about someone in the community. If you’re in a position to donate to NEHA this year, I would be so grateful for your support of this wonderful organization.

Thank you so much,

Marianne