We are in an interesting place with Blake right now. New science and testing has revealed that that Blake may NOT have Von Willebrands disease after all! A study done by the University of Wisconsin- Go Badgers!- found that of those who tested positive - 17% of Caucasian males were a false positive. We are continuing to monitor Blake, and looking to find consistency with his lab work -given the new method of testing. We could be dropping his diagnosis of Von Willebrand’s Disease by his comp visit next year! This is the second time we have been through trying to figure this out and it’s been a bit of an emotional ride. We are very hopeful that his next round of labs will come back normal. If he is free and clear, we will continue to support Hemophilia of Indiana in their important work for the bleeding disorders community. Hemophilia of Indiana has been such an amazing resource and support system to us all these years.
For many, a world without bleeding disorders is simply a dream. Thousands of kids and adults affected face internal bleeding, costly treatments and lifelong infusions.
I’m all in to help end bleeding disorders. My personal goal is to raise as much as possible for this worthy cause. Will you help me reach my fundraising goal? It’s easy — just click “donate” to make a secure donation.
Every dollar stays within our community and supports critical initiatives such as funding research to find better treatments, educating medical providers on the latest innovations and care, ensuring families have access to quality healthcare and providing access to the best educational resources available.
Will you help me reach my fundraising goal? Please make a donation today.
Thank you in advance for your support and united, we will make a difference.