We hope that during these uncertain times you and your loved ones are safe and well. So many of the things in life that we once looked forward to have been postponed or cancelled. The Unite for Bleeding Disorders Walk, an event which our family looks forward to year after year is now virtual. Our sons grew up attending the Walk and beamed with excitement upon seeing their family, friends and the bleeding disorders community come together for this special event. It is day when we’d leave with hearts full of hope, mouths full of rainbow bagels and the warmth of this supportive, beautiful community.
Since our first walk in 2011, our team has raised crucial funds that directly supports our sons who are diagnosed with Severe Hemophilia, and the NYC bleeding disorders community. Hemophilia is a rare, life-threatening, bleeding disorder - there is no cure. Treatment costs hundreds of thousands of dollars yearly without which would cause joint problems, internal bleeds or death. We want to express our sincerest gratitude for your generous contribution to our team over the past years. Your significant donation has allowed the New York City Hemophilia Chapter to accomplish the following:
Allow for access to quality healthcare and medical treatment for families and individuals in need.
Provide educational events to inform families and individuals about treatment advances, current innovations, caring for one’s mental health, and resources available.
Send families and individuals to Albany and Washington DC to advocate for healthcare rights with lawmakers.
Support major events such as the Walk, Education Day and other informative and inspirational gatherings to foster deeper connections amongst the bleeding disorders community.
Provide Covid relief and emergency funding to families and individuals.
Facilitate crucial youth programs such as our children’s day camp, teen mentoring retreats and our future family camp where our youngsters can bond with their peers and learn about managing their bleeding disorder.
Funding current research towards better treatments and ultimately finding a cure.
We hope that we can count on your generosity again that directly supports our sons’ healthiest futures and our bleeding disorders community. We understand that these uncertain times may call for austerity. However no amount is too small and helps our cause in making a difference.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."