Our family is deeply grateful for your support of John and Will's walk team.
This past year has been a life-changing year for John (13 years old) and Will (11 years old). Thanks to new medicine which is injected subcutaneously and only once a week. Both boys have been extremely fortunate to have access to this medicine and have experienced only a couple of bleeds in total during the last year. Our Chapter (RMHBDA) invests a great deal of the funds from our WALK to advance the kind of medical research that is making this new treatment option possible. As always, the hope someday is for a Cure!
With our thanks and gratitude,
Brad, John, Will, Charlie, Ava Benne and Jennifer Yarger
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."