For many, a world without bleeding disorders is simply a dream. Thousands of kids and adults affected face internal bleeding, costly treatments and lifelong infusions.
I’m all in to help end bleeding disorders. My personal goal is to raise as much as possible for this worthy cause.
Why we walk? Our family is personally affected by bleeding disorders. Our mom has von Willebrand disease and Connor has von Willebrand disease and Factor 5 deficiency. Nikolaus has an undiagnosed bleeding disorder, meaning he has the bleeding episodes, but the testing is not quite catching a positive for him.
With your help we can help better advocate for better testing and treatment, but the boys favorite, most needed ask is for funding for camp! This is very important to the boys to help them learn about thier disorders and helps them to live thier best life!! Please help us raise money for them to attend!
Will you help me reach my fundraising goal? Please make a donation today.
Thank you in advance for your support and united, we will make a difference.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."