For many, a world without bleeding disorders is simply a dream. Thousands of kids and adults affected face internal bleeding, costly treatments and lifelong infusions. One of those is my son. Clark was born with a genetic condition that leaves a protein necessary for clotting out of his blood. Once a week we infuse that missing factor IX back into his blood stream. He’s able to run and play without injury because of people before us who advocated and supported our community.
Continued advocacy for adequate healthcare is still needed. Support and education for families getting a new diagnosis, building community for teens, kids learning to self infuse at a summer camp staffed with nurses, and families navigating the ups and downs of a rare disease together is all needed. Our Oregon chapter has been a great support for our family, and given us the tools and confidence we need as parents.
I’m all in to help end bleeding disorders. My personal goal is to raise as much as possible for this worthy cause. Will you help me reach my fundraising goal? It’s easy — just click “donate” to make a secure donation.
Every dollar stays within our community and supports critical initiatives such as funding research to find better treatments, educating medical providers on the latest innovations and care, ensuring families have access to quality healthcare and providing access to the best educational resources available.
Will you help me reach my fundraising goal? Please make a donation today.
Thank you in advance for your support and united, we will make a difference.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."