Each year when we have asked for your help, we have spoken about the hope of a breakthrough in the treatment for hemophilia.
Well, this was the year! And lives have been changed.
A few generations ago, there was a major step taken when treatment using actual blood productions was replaced with a synthetic formula called Factor. The danger from tainted blood from which many with hemophilia suffered was no longer a threat.
And now another change has taken place, one that has had a direct impact on our lives. Our grandson Will was approved for a totally new approach that is revolutionizing the treatment of hemophilia. And it has already changed his life.
Each week, since his birth, Will has endured the painful process of an IV inserted into his arm or leg to have Factor administered to him so that his blood would clot more normally. This process took place multiple times per week. Often the IV was needed additional times when there were bruises or joint pain caused by a fall or excessive activity that would be normal for most kids. Sometimes it required four or five (and on occasion even more) insertions of the needle in his arm before it would find his little vein.
But a few months ago, Will qualified for an amazing new product, a weekly injection similar to getting a flu shot. No IVs! No painful and often repeated efforts to get the IV inserted adequately. Can you imagine how this would affect your child or grandchild’s life?
And so, we ask you again, stand with us. Be a part of something that is truly transforming lives.
Will you help us reach our fundraising goal? It’s easy. Just click "Support Me” to make a secure donation.
Every dollar stays within our community and supports critical initiatives such as funding research to find better treatments, educating medical providers on the latest innovations and care, ensuring families have access to quality healthcare and providing access to the best educational resources available.
For many, a world without bleeding disorders is simply a dream. Thousands of affected kids and adults face internal bleeding, costly treatments and lifelong infusions.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."