Steve had a very normal childhood. The usual bumps, bruises, cuts and goose eggs. He played grid kid football and ran track in his high school years. In one of the track events the muscles came off of his hip which called for a surgery. He broke his arm and had to have surgery and then one day at work he fell and crushed his ankle, there again he had to have another surgery.
Fast forward several years later, one of his grandsons Payton had his tonsils taken out and then was sent home. He started bleeding and back to the hospital they went, three different times. The doctors put their heads together and decided to check him for Hemophilia. Sure enough that was exactly what he had! This saved his life because they were able to identify why his blood wasn’t clotting. That told the doctors that this was a genetic problem.
At 60 years old Steve found out he had Hemophilia. Thankfully never once in his entire life had he had a severe bleed. This was a blessing because the technology was not as advanced as it is today. Many people ended up passing away due to getting HIV and Hepatitis C from blood transfusions. Now they use a synthetic blood product which creates the protein that is missing from a hemophiliacs body that helps with the clotting process.
Its turned out this Hemophilia gene manifested itself in four of his grandsons who are Preston and Payton Boling, Carter Shaw, and Cayson Jaussi.
Each person on our team has a story to tell, a reason to and a cause that binds us together.
For many, a world without bleeding disorders is simply a dream. Thousands of kids and adults affected face internal bleeding, costly treatments and lifelong infusions.
Every dollar stays within our community and supports critical initiatives such as funding research to find better treatments, educating medical providers on the latest innovations and care, ensuring families have access to quality healthcare and providing access to the best educational resources available.
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Thank you in advance for your support and united, we will make a difference.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."