I'm walking and walking and walking in the Unite for Bleeding Disorders Walk - a fundraising event to support kids and families! Inherited bleeding disorders are a life-long condition. There is no cure. I am determined to send 6 kids, at a cost $1,638 per child, to Camp Hemotion .
We also have Family Camp where our docotors, nurses and physical therapists come and show parents how to wrap and protect joints. Many parents learn to infuse medication for their kids without having to go to an emergency room. If I had to, I would learn to infuse my baby but it takes a lot of courage and confidence to do so.
At our recent Family Camp, I got to see truly heartwarming sight: A 15 month old little guy who was not yet walking likely due to ankle and/or knee pain. We brought in therapy dogs to meet the kids and, out of nowhere, our little guy got up and RAN to pet the dogs. First time walking ever and I was there to see it!
Watch me blaze new trails and climb mountains in the link below!
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."