We are participating in the Unite For Bleeding Disorders Walk - a fundraising event to support those living with bleeding disorders like our daughter Roblynn. Inherited bleeding disorders are a life-long condition. Currently, there is no cure. While treatment exists, it is costly and may require lifelong infusion of replacement clotting factor that is manufactured either from human plasma or using recombinant technology. Scientists are actively engaged in finding cures and improving treatments. That’s why we are joining in with Unite for Bleeding Disorders raising awareness & money for a cure! We like to ask for your support of this exciting event! Thousands of families in our community, and across the country will benefit from your support and the success of the walk held on Sept 29th, 2018. You still have time to make a donation you have until October 20, 2018.
It is okay that you missed the walk, no problem you can still make a donation to Unite For Bleeding Disorders through Team Roblynn's fundraising page and together we can make sure that anyone in our community living with a bleeding disorder like our daughter Roblynn can receive the training and services they need to live a full life until a cure is found. [Team Roblynn fundraising page]
Thank you in advance for your support and together, we will make a difference.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. "Coming together is a beginning. Keeping together is progress. Working together is success."