We may be quarantining, but we’re also Quaran-teaming and Uniting for our May 17th Walk! Many of you have been asking what's happening with the Unite Walk in light of COVID-19. It's now more important than ever to Come Together and Unite with your bleeding disorders community. We are adapting to this reality by moving forward with a virtual event now and a physical walk to be held in the fall.
While we must physically distance on May 17, we don’t have to socially isolate ourselves. Instead, we will UNITE as one community, by pioneering our first ever large-scale virtual event: Come Together. Join us Sunday, May 17th for this LIVE event to celebrate you, our amazing community, and the incredible fundraising you are doing! Featuring:
● Musical performances
● Virtual Group Song & Dance
● Highlights from the top Quaran-teams
● Pizza delivery
● Raffle prizes
● Costume Contest
Pizza at Lake Merritt will be substituted by pizza delivery to your home! Walkers in costumes are eligible for special raffles and all participating walkers will have an opportunity to win Disney gift cards for attending the event! More details as to how you can participate “virtually” are coming soon! If we all “Come Together and Unite”, we can stay strong!
Question: If the Walk is being postponed until a later date, should I wait to begin my fundraising?
Answer: No. Our work at the Foundation has not stopped. Our Board, staff and volunteers are working hard to ensure that we can serve this community during these challenging times with emergency assistance and online support and education, as well as keeping the Foundation solvent and strong so that once this crisis ends we can continue to provide important programs such as camps for families, children, teens and women with bleeding disorders.
Question: Will other events be postponed?
Answer: We don’t know at this time. You are probably aware that we have had to postpone our Emerging Therapies Forum, our Crab Feed and our Family Education Day (FED). The Forum and FED raise funds critical to helping the chapter support the bleeding disorders community.
While we know we are still waiting for the dust to settle, we hope you will continue to support HFNC and the mission and community we serve.
Question: Is there a new date for the Walk?
Answer: We have tentatively set a date for a “Reunion Walk” for October 4th. However, we encourage all teams to raise funds throughout the year!
Question: Do I have to sign up for Zoom to be able participate?
Answer: No. Everyone who is signed up for the walk will be emailed the Zoom info on Wednesday, May 13. You can connect to Zoom on your computer or phone.
Question: What are funds raised from the Walk used for?
Answer: Funds are used for the provision of programs and services and their associated costs such as:
Emergency Financial Assistance to families in need during this crisis. Community members are already losing their jobs and access to health-care. We need to support our bleeding disorders family as much as possible to ensure that everyone has food on their table and a safe space to live.
Education and support programs for community members who are facing both physical and mental health challenges in the face of this virus. We are launching a webinar series in the next week or two and plan to host other virtual programs to address needs. We may also need to provide some smart devices or tablets to a few families so that they can take part in these programs while physical distancing is still mandated.
Camp Hemotion, our largest camp dedicated to kids and siblings affected by bleeding disorders. This medically-supervised Camp teaches life skills, condition management and medication administration in a fun environment. The cost of camp per child is $1,650 and many families cannot afford to contribute to this cost. Please help us ensure that all children can attend! Additionally, HFNC provides a family camp where our newer families learn to care for a child with a bleeding disorder. Lastly, we also run an educational camp weekend for women affected by bleeding disorders.
The money raised at this event will be used to assist our overall mission to educate patients and their families and to provide support to persons in need with bleeding disorders within the 20 Northern California counties we serve. In 2019, this community and its supporters came together to raise nearly an incredible $100,000! With your support, we can reach our goal again this year! Please consider starting a team, joining an existing team, or making a donation. Every little bit counts and brings us closer to our goal! If you’re not sure who to donate to, check out our amazing list of teams! Be sure to click on their links and see why they Unite!
PARTICIPANTS WHO MAKE A $25 MINIMUM DONATION WILL RECEIVE A UNITE FOR BLEEDING DISORDERS T-SHIRT!
The Hemophilia Foundation of Northern California is a non-profit 501(c)(3), community based organization whose mission is to provide education and support to families affected by bleeding disorders in the counties we serve in Northern California.